Celine Dion diagnosis helps people with Stiff Person Syndrome

“Every year I notice it gets worse.”

He had to retire early from his job and give up his hobby, angling.

“It was a difficult time for me because I had a mortgage and it was very worrying financially,” he said.

“It took a while to get benefits in place and be able to pay all the bills.”

“I’m struggling with mobility,” he added.

“I can manage around the house with some sticks.

“I can go short distances with crutches but I’m relying more on a wheelchair now.”

Mr Morgan said he participates in a Facebook group, external offering support and raising awareness, but says having a celebrity with SPS has made a difference.

“When Celine Dion got diagnosed with it, I wouldn’t wish it on my worst enemy, but it did raise awareness,” he said.