Wolverhampton family hit £1m target for son with ultra-rare MND

A family have raised £1m for specialist treatment for their six-year-old son, who is believed to be the youngest person in the UK living with an extremely rare form of Juvenile ALS.

Partaap’s parents launched the appeal after he was diagnosed with a rare variant of the condition, a form of motor neurone disease, earlier this year.

The family said they reached their £1m target in just over two weeks, with donations coming from their local community and supporters around the world.

Partaap’s mother, Gurbinder, described the response as “phenomenal”.

“It’s quite overwhelming,” she said. “Partaap’s story has resonated with a lot of people.

“We’re so grateful and really appreciate everyone.”