Kidney transplant: Hounslow sports coach is ‘lucky to be here’

“It was the best thing you can get because I was looking at my future and no-one wants to be stuck in that position – on dialysis, having to go to hospital three times a week – it’s not ideal for anyone,” he says.

“I wouldn’t be able to teach like I do now, or anything. So getting that call was a real gift, it was amazing.”

Prune Belly Syndrome, also known as Eagle-Barrett syndrome, is a rare condition which only affects boys, according to Contact, external, a disability charity.

For those with the serious condition it causes the poor development of the abdominal muscles and urinary tract problems among other symptoms.

After his kidney transplant, Johnny was eventually able to get back to playing football and was selected for this year’s Transplant World Cup to represent England – where they came third.

“To be back playing the game I love is amazing,” he says.

“The dream for everyone I think is to represent their country but to finally do it was amazing, a great opportunity.”