Vitiligo: Indian woman has ‘lost identity’ over skin condition

Throughout her 20s and 30s, her vitiligo “spread very rapidly”, and when the spots started to appear on her face she said it was “really hard”.

She also found the unknown hard to deal with.

“Unfortunately vitiligo is one of those conditions where you never really know if it’s going to get any better or worse,” she said.

Now 48, Ms Romanay has no pigment left in her skin.

“A lot of people don’t realise that I’m Indian because they see someone who’s quite pale,” she said.

“That makes it really incredibly hard because I do feel like I’ve lost that part of my identity.”