Meanwhile, Burrow’s physiotherapist, Ali Whelan, said he had strong opinions on what he wanted.
“He would come in with a pre-programmed message to me on his iPad saying, ‘thank you very much for the speech, but I’m going to say no’.
“And we’d have a good laugh…I remember his big beaming smile.”
Part of Burrow’s legacy is a new facility in Leeds called the Rob Burrow Centre for MND, paid for by the money he and Sinfield raised.
Construction, which is now under way, is expected to take a year to complete and the charity remains focused on raising the last £1m of its target.
A special ceremony took place at the building site on Monday, attended by his family and Sinfield.
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