MND dad: I must keep working despite terminal diagnosis

MND is progressive and causes muscle weakness, stiffness, and paralysis that gets worse over time.

There is currently no effective treatment or cure for the condition that affects the brain and nerves.

Scott, who was once a scratch golfer, set up the business selling golf accessories during the pandemic while on furlough.

Now in a wheelchair, he continues to list items to sell online while his mother and father, both 76, volunteer to take them to the Post Office for delivery.

They take it in turns to live with Scott and his wife, Robyn, and their four-month-old daughter, Rae.

Scott spent his life savings on adapting the family home to fit his needs, and he now receives £170 a week in disability allowance but it is all used to pay for a Motability vehicle.

Robyn is currently on maternity leave from her job as a programme manager for Public Health Scotland.

She said: “I can’t put into words just how special life has been since I met Scott. We have had some great adventures together.

“However, I can’t sugar coat it, receiving that kind of diagnosis, and realising there is currently nothing you can do to cure or make it better for your loved one is the hardest thing.

“Watching the person you love struggle physically as MND takes hold, and being able to do very little to stop it is heart breaking.”