Misokinesia and misophonia: Families seek cure for condition

Among the people that contacted the BBC were loved ones of those with misokinesia.

Sophie, not her real name, said being around her 32-year-old autistic son who has the condition was akin to “living on eggshells”.

“I really have to watch what I’m doing with my hands. You have to be very still, you have to be really mindful about the way that I’m speaking.

“I have suffered. Even being in the room and breathing triggers him. It is life-limiting.”

She said there needs to be “boundaries” around behavioural adjustments for people with the condition.

“They are controlling people around them,” she said.

“I don’t think we can just say it’s because he’s autistic or he’s got misokinesia and we need to just allow for it”.

She added: “You also have to take a position which is, ‘I have to breathe, you might not like the sound of my breathing but I’d die without it.'”

Sophie said while research into the condition was a good thing, the focus should be on equipping those who have it with “coping strategies”.

“Otherwise it’s just going to be anarchy and chaos out there,” she said.

“Can you imagine being at a restaurant where half the people have all got that condition, it’d really be kicking off wouldn’t it.”

Additional reporting by Amy Walker