Ms Williams said she had signed a letter organised by campaign group #ThereforME calling on Health Secretary Wes Streeting to improve care.
The letter asked Mr Streeting and the government to acknowledge that gaps in NHS care for ME patients were leading to “serious patient safety concerns”.
According to the letter, “patients at the severe end of the disease spectrum are bedridden, sometimes tube-fed and confined to quiet, darkened rooms due to extreme light and sound sensitivity”.
“In the most extreme cases, patients languish behind closed doors with little or no support,” it added.
Ms Williams said: “I feel we’ve all been left to rot – which I know sounds dramatic – neglected and not being listened to.
“This campaign is giving us all a voice, especially for people who are so severe they can’t talk and don’t have their own voice,” she added.
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