Parents from Hemel Hempstead appeal for heart donor for son

William is the first child of Ms Osborne and her partner Stuart Jones, 43.

The couple have been living in hospital accommodation to be close to their baby.

After being delivered by emergency caesarean, William was able to go home at 10 days old.

However, his parents noticed he was very sleepy and struggled to feed, so took him back to hospital three weeks later, where he was diagnosed.

Ms Osborne added that a transplant was the “only option” for her son.

“We really miss him, we had a few weeks at home and he was an absolute delight,” she added.

“He’s funny and has these little frowns and facial expressions – he is cheeky. We want him back home.

“I can’t hold him much and it’s heartbreaking. We are terrified, he could deteriorate at any point.

“This is the only option to save his life.

“We could be waiting a year, two, longer, he may not make it to transplant but we’re keeping going – he needs a transplant,” she said.

According to NHSBT, there are currently more than 7,000 people waiting for an organ transplant in the UK, including 250 children.

Of those, almost 300 need a heart transplant, some 38 of which were children.

Ms Scales said: “We urge parents to think and talk about organ donation for themselves and their family today.

“Your decision could help save lives.”