
There are several common side effects of taking the medication, such as dry skin, eyes, nose, lips, mouth and throat, as well as headaches, and pain in the joints and muscles.
High doses can also sometimes cause changes in behaviour, such as depression, which often dissuades people from starting treatment, according to campaigners.
Many have long called for teenagers not to be prescribed the drug following a number of cases – including those of young people who took their own lives.
The mother of 15-year-old Annabel Wright, who took her own life, last year said proposed safety measures were just paying “lip service”.
These were suggested by the Commission on Human Medicines, external, and included tighter controls on prescribing to under-18s by requiring a sign-off by two prescribers – usually doctors – when the medicine is first prescribed to people aged 12 to 18.
It also recommended families should be given better information, with patients monitored better.
The commission also said the drug was an effective treatment for cases of severe acne which had not responded to usual treatments.
Ashlee said despite being aware of the risks, it had been hailed as a “miracle drug” which changed lives, and it was her last resort.
Her dosage has been steadily increased over the year to help manage the symptoms, and despite “having her days”, Ashlee said sharing her journey online really helped her feel supported.
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